Updated 1-10-2020
EPSO working group for patient and user participation in supervision
Restart of the WG and next WG MEETING will be held at 6th May in Malta.
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LAST WG MEETING was held 16th April in Copenhagen, Denmark at DPSA offices Islands Brygge 67
Please see invitation from the wg chair Lena Weilandt:
180313 Invitation patuser WG Copenhagen 2018.pdf
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Participants: Lena Weilandt (Chair), Sweden; Tove Gemzell, Sweden; Hanne Sognstrup ,Denmark (NBSS); Else Lund Frydensberg, Denmark (NBSS); Birgir Jakobsson, Iceland; Diana Dumina, Latvia; Charlotte Hjort, Denmark (DPSA); Torsten Larsen, Denmark (DPSA); Sorien Kleefstra, The Netherlands(IGZ); Paul Robben,
The Netherlands(IGZ); Renee Bouwman, The Netherlands (NIVEL); Bente Smedbråten, Norway; Hanna Ahonen, Finland;Riitta Aejmelaeus, Finland ; Jooske Vos, EPSO; Mari Murel, EPSO;
Additional members in Reykjavik: Laura Scheving- Thorsteinsson , Iceland, Henrik Frostholm, Denmark
Alvaro de Moreira da Silva, Portugal, Cheew Bin tee, Singapore,Carmen Buttigieg, Malta.
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LAST WG MEETING WAS HELD in Reykjavik 27th September 14:00-17:00
at Embætti landlæknis (The Directorate of Health ) offices, Barónsstíg 47, 101 Reykjavík
Presentation by WG chair Lena Weilandt:
SWEDEN WG patientusers final.pdf
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Notes by Lena Weilandt:
Notes from EPSOworkinggroup patientuser involvement 27 september 2017 final.pdf
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Agenda and Invitation letter from the working group chair:
170828 Invitation to workinggroup patientuserparticipation sept 2017.pdf
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170829 Agenda patientuser participation Working group Iceland.pdf
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Previous working group meeting was held 24th April 2017 in London.
See WG Chair Lena Weilandt presentation:
Presentation EPSO 24th april 2017 London Weilandt.pptx
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Input from CQC- Chris Day, Director of Communications:
Chris Day London 2017.ppt
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Input from Denmark, Socialstyrelsen- Henrik Frostholm:
EPSO - WG patient and user. Henrik Frostholm - London - April 2017.pdf
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Letter from the chair to the working group members including Agenda:
Download
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Member interviews-with 11 participants from different European inspectorates were held.
Aim of this interview is to make an inventory on generic level of best practices ,unsuccessful cases and risks and effects of involving users to supervisory practises. Results will be presented in London.
You can find the interviews here: UP INTERVIEWS Member access only, please ask access from EPSO secretary
161205 User Participation Member interview format.pdf
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Background
Many countries have the views and perspectives of patients and users as a central part in their policies and strategies for supervision. Some countries have put this into action by having patients and users as active partners in the supervisory activities.
Objectives
•Develop a network to identify ongoing projects and methods for patient and user participation.
•Share knowledge, experiences and evaluations of the different methods.
•Identify and support ongoing research.
Suggested forms for cooperation
Chair of the working group Health and Social Care Inspectorate, Sweden
Initially one or two physical meetings to identify specific goals of the network based on the expectations of the participants.
The main channels for discussions and exchange of information will be by mail and through EPSO web.
See Jooske Vos presentation :
"former working group activities on user participation.pptx"
Download
See Lena Weilandt presentation:
EPSO User Participation Lena Weilandt.pdf
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The working group presentation by Lena Weilandt can you find under the 'Meeting memos' below:
Meeting memos accessible to EPSO members
(please ask access from EPSO secretary)
User Participation was also one of the main topics of EPSO 22nd conference at Stockholm 29-30 September 2016 - see Stockholm 2016
Additional material:
Kleefstra et al. 2016: Investigating thePotentialContribution of Patient Rating Sites to Hospital Super vision: Exploratory Results From an Interview Study in the Netherlands.
Download
Previous activities:
Click here to open the report of user participation. This report was published in the Brussels conference in 2013.
